It has been brought to my attention that I expend a lot of energy giving hemophilia a rather rosy glow. It seems I give the humorous incidents precedent, and attempt to keep the painful truths behind a curtain, safely out of sight. That perhaps I trivialize the condition to the detriment of all those who must struggle with its realities every day. How can I expect society to understand the seriousness of our pain and struggles if I keep talking about Castor oil induced fifty yard dashes, and making crippling knee hemorrhages sound like an everyday occurrence not worthy of treatment. I am making light of the most devastating thing to ever happen to these people.
The Rest of the Story
19 October 2009
16 October 2009
The zombies were having fun . . .
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The first one involves jack-o-lanterns. Every year around the first week of October each kid on 6-West would get a small pumpkin which we would then carve into the scariest, or weirdest, jack-o-lantern we could manage. The jack-o-lantern would then sit on our bedside stand until a few days after Halloween.
The Rest of the Story
Labels:
1950s,
hemophilia,
hospital
03 October 2009
When there's too much of nothin', no one has control . . .
I have been mulling over this post for quite some time. Not simply because it is embarrassing. If I stopped telling stories just because they were embarrassing I would have about four and a half minutes of not quite boring material. Nor is my reluctance cause by the subject matter. With a bit of finesse the subject can be presented in a manner that is only slightly offensive and mildly scatological. No, the reason I haven't gotten to it, like the reason we don't do so many things is: it's hard.
The Rest of the Story
The Rest of the Story
Labels:
bleeding,
hemophilia,
hospital
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