I hurt easy, I just don't show it . . .

It has been brought to my attention that I expend a lot of energy giving hemophilia a rather rosy glow. It seems I give the humorous incidents precedent, and attempt to keep the painful truths behind a curtain, safely out of sight. That perhaps I trivialize the condition to the detriment of all those who must struggle with its realities every day. How can I expect society to understand the seriousness of our pain and struggles if I keep talking about Castor oil induced fifty yard dashes, and making crippling knee hemorrhages sound like an everyday occurrence not worthy of treatment. I am making light of the most devastating thing to ever happen to these people.



The Rest of the Story

The zombies were having fun . . .

I have two Halloween stories I want to tell. At first I was going to do both of them in one long, involved post, but I know that many people—my wife, primarily—cannot, or will not, read anything longer than two or three paragraphs on a computer screen. (And yet, she can spend hours examining and comparing spread sheets the size of Texas until she finds the one tiny discrepancy that shows someone somewhere did something naughty. Go figure.) So in the interests of those people—my wife, primarily—I will tell them in two separate posts that are only sort of long, and not very, by my standards, involved.

The first one involves jack-o-lanterns. Every year around the first week of October each kid on 6-West would get a small pumpkin which we would then carve into the scariest, or weirdest, jack-o-lantern we could manage. The jack-o-lantern would then sit on our bedside stand until a few days after Halloween.



The Rest of the Story

When there's too much of nothin', no one has control . . .

I have been mulling over this post for quite some time. Not simply because it is embarrassing. If I stopped telling stories just because they were embarrassing I would have about four and a half minutes of not quite boring material. Nor is my reluctance cause by the subject matter. With a bit of finesse the subject can be presented in a manner that is only slightly offensive and mildly scatological. No, the reason I haven't gotten to it, like the reason we don't do so many things is: it's hard.


The Rest of the Story

Don't be nervous, don't be flustered, be prepared . . .

I have already talked about the unfortunate semester I spent at St Elizabeth's when I was in the third grade. Believe me, I only scratched the surface. There was, for example, "Spelling Period." This was not a part of the day devoted to studying spelling, and perhaps having a quiz like any normal teacher might have devised. It was a period, usually about thirty minutes long, during which Sister Rose spelled every word she would normally say; and you, if called on, were expected to do the same. When your sentence came to a punctuation mark like 'comma' or 'period' you said the appropriate word.

I hated Spelling Period. I have learned over the years that I do not assimilate things as quickly when I hear them as I do visually, and I spent most of Spelling Period wondering what the heck was going on. Sister Rose would be up there yammering on, "A•N•D•W•H•A•T•I•S•T•H•E•C•A•P•I•T•O•L•O•F•M•I•C•H•I•G•A•N•comma•G•U•Y•question mark"

When I heard that "comma•G•U•Y•question mark" I knew I was in trouble because I didn't have the slightest clue about what the question was. I got very good at spelling out, "I•D•O•N•O•T•K•N•O•W•period."

But as much grief as Sister Rose gave me, she was not the worst person I ran into that year. And like the good Sister, this man also felt he had God on his side.


The Rest of the Story

Ah, but I was so much older then . . .

When I think back on it, it seems that a good deal of my younger life was concerned with, or at least references, the wards and floors of the University of Michigan Hospitals. Just as I might tell you about walking down a street in Buffalo in the winter, and expect the place name to elicit a certain set of connotations and images; telling you that this or that happened on 8-West or 6-East gives the story, for me at least, an atmosphere that it could have no where else.

Moving from one floor or ward to another was also a kind of rite of passage, and meant I had, with luck, become a bit more mature. Since we didn't move to Michigan until I was almost six, and my first hospitalization wasn't until I was seven, I started out on 6-East.


The Rest of the Story

See the man with the stage fright . . .

It happened when I was nine years old, which would make it the summer of 1955. Having been fed lunch my brother and I were invited by our mother to spend the rest of the afternoon outside. Actually, it wasn't so much an invitation as a declaration of what was going to happen. She had cleaning to do; soap operss, Queen for a Day, and Liberace (the last two were different) to watch; and she didn't need two young boys doing their best to distract her.

To be honest, Mom did not really have to say very much to get us out of the house. The last thing nine and seven year old boys wanted to do on a nice summer day was stay inside. We had ants to watch, a tire swing to break our arms and/or necks on, and a cardboard rocket behind the shed to fight invading Martians in. At the very worst we could sit on the back steps and watch our cat taunt our dog by staying just an inch or so beyond his reach.


The Rest of the Story

Dear old Golden Rule days . . .

The school I went to when I was in first and second grade, Central, was built a little before World War I, and the architects had certainly never heard of the Americans with Disabilities Act. (Probably because it hadn't been passed yet.) To get into the thing you had to go up six or seven steps, my classroom was on the second floor, and the restrooms were, of course, in the basement. The steps in the stairwells were made of some kind of stone that had been rounded by fifty some years of use. They were also slick as ice whenever there was the least bit of moisture on them.

Because my crutches would often just slide out from under me on those steps the principal, Mr Green, would carry me up to my classroom in the morning whenever I had a knee hemorrhage, and then back down at the end of the day. At lunch time he would carry me down to the lunch room and then back up to the classroom, and if I needed to go #1 or #2 Mr Green would carry me down the three floors to the restroom. All this being lugged about like an infant was just a bit humiliating for me, and didn't do Mr Green's bad heart much good either, so I often didn't go to school when I had a knee bleed.



The Rest of the Story

Roger, draft dodger, sneakin' out the cellar door . . .

In October of 1964 I turned eighteen. Eighteen was that magical semi-step into adulthood for young men that meant that you were still far too young to drink alcohol, except in the state of New York, and still could not vote, but you were now mature enough to spend a few years in the Army. Several weeks before my birthday I received a large envelope in the mail from the Selective Service with a nine or ten page form I was to fill out and return before said birthday. I really don't remember much about the form except for thinking, "I haven't lived long enough to have answers for this many questions." Or something like that. That is at least the gist of my reaction which was a very complex mixture of thoughts, emotions and panic which at the time got edited down to something which probably sounded more like, "Damn!"


The Rest of the Story