Most of my life would only make sense if you took into account the missing factor. For many of the guys I knew it was VIII, but for me the missing factor has always been Factor IX.
Slightly more confused than Arthur Dent, and a bit more centered than Holden Caulfield.
Lately taken to rambling on incoherently about subjects not even tangentially connected to the subject at hand.
It started out as a place where I, a newly retired, frustrated writer, could post my rambling little self-indulgent essays where untold millions of readers could ignore them instead of just my wife. In that regard it was an unmitigated success.
Lately, however, its primary function has been evolving into being the record the world of the 50s through the 70s from the point of view of a boy with hemophilia, which would, of course, be me. I am convinced that one of the reasons I survived some of my more dramatic hemorrhages is because I knew my grandfather had survived even worse. If he could make it given the treatment he received, I knew I could make it.
Now there is yet another generation of little boys with hemophilia, and their parents, trying to make sense of it all. Many of the problems my brother and I faced have been resolved by advances in medicine, but the vast majority are still there causing parents and boys to stare at the ceiling long into the night wondering how they are going to cope with some issue. Perhaps, if they can see how I, and hopefully others, dealt with the same issues, it will take some of the fear out of the equation, and give them the confidence to find their own way. After all, if a schlep like me can do it, think of how well you will be able to.
I am moving all of the posts not related to hemophilia, hospitals, and other things that start with 'H' over to my other blogs (listed brazenly in the sidebars and navigation buttons in the header), and hope that one or two of you will see fit to visit them, if only to find out my opinion of pick-up trucks.
Hope For Bleeders
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When I first started this blog in December of 2008 I had no idea what it
meant to raise a child with hemophilia. I didn't even want to talk to
anyon...
Nanny
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I breaks my heart to say but my precious Nanny Priddle passed away
yesterday. She was 91 and she passed away peacefully in her sleep with her
family by he...
JNC Dallas
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Today is the day!!! I am in Dallas with 95 kids with a bleeding disorder
who will compete today in Baseball and Golf!! Let me know if you or your
child is ...
i used to be scared of this disease.
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its true. when evan was diagnosed with hemophilia, i really fell apart
inside. my emotions took over and i cried what felt like nonstop for days.
i was con...
The Importance of Organization Planning
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Whether you happen to be a new business looking to try to sell investors,
or youre an established business looking for growth, a definite and
succinct pl...
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